| 1. |
- Frank, Catharina, et al.
(författare)
-
Patient participation in the emergency department : an evaluation using a specific instrument to measure patient participation (PPED
- 2011
-
Ingår i: Journal of Advanced Nursing. - : Blackwell publishing. - 0309-2402 .- 1365-2648. ; 67:4, s. 728-735
-
Tidskriftsartikel (refereegranskat)abstract
- Aim: This study aimed at evaluating patient participation from the perspective of patients who received care in emergency departments, with a separate examination of the relationship between participation and age, sex, education and priority level.Background: International and national guidelines encourage patient participation. High patient participation is required to ensure a high quality of care. No studies evaluating patient participation at an emergency department have been published.Methods: An evaluating study, with the Patient Participation Emergency Department questionnaire, was conducted at emergency departments in Sweden. A consecutive sample of 356 patients participated. Data was collected in 2008: participants were 49% women and with an average age of 56 years. The statistical methods used were Student’s t-test, one-way ANOVA and Spearman correlation.Results: The results revealed that patients experienced good requirement such as time and information for participation. Mutual participation demonstrated a reasonable level but patient participation is low in two dimensions (Fight for participation, Participation in getting basic needs satisfied). Young and well‑educated patients fought more to participate in their care and gained less attention for basic needs than older and less well‑educated patients.Conclusions: Patient participation in a mutual care situation between patients and healthcare professionals requires further improvement to ensure that patients are satisfied and do not have to struggle and fight in order to participate in their care.
|
|
| 2. |
- Frank, Catharina, 1961-, et al.
(författare)
-
Questionnarie for patient participation in emergency departments : development and psychometric testing
- 2011
-
Ingår i: Journal of Advanced Nursing. - : Blackwell Publishing Ltd. - 0309-2402 .- 1365-2648. ; 67:3, s. 643-651
-
Tidskriftsartikel (refereegranskat)abstract
- Aim The aim of the study was to develop and test the psychometric properties of a patient participation questionnaire in emergency departments. Background Patient participation is an important indicator of quality of healthcare. International and national health care policy guidelines promote patient participation. While patients cared for in emergency departments generally express dissatisfaction with their care, a review of the literature fails to reveal any scientifically tested research instruments for assessing patient participation from the perspective of patients. Methods A methodological study was conducted involving a convenience sample of 356 patients recently cared for in emergency departments in Sweden. Data was collected in 2008 and the analyses performed were tested for construct and criterion validity and also homogeneity and stability reliability. Results A 17- item questionnaire was developed. Two separate factor analyses revealed a distinct four- factor solution which was labelled: fight for participation, requirement for participation, mutual participation and participating in getting basic needs satisfied. Criterion validity presented showed 9 out of 20 correlations above 0.30 and of those 3 moderate correlations of 0.62, 0.63 and 0.70. Cronbach’s alpha coefficient ranged from 0.63 - 0.84 and test- retest varied between 0.59 and 0.93. Conclusion The results signify evidence of acceptable validity and reliability and the questionnaire makes it possible to evaluate patient participation in ED caring situations. In addition it produces data which is useable by a diverse range of healthcare professionals.
|
|
| 3. |
|
|
| 4. |
- Rask, Mikael, 1958-, et al.
(författare)
-
Validity and reliability of a Swedish version of the Relationship Assessment Scale (RAS) : a pilot study
- 2010
-
Ingår i: Canadian journal of cardiovascular nursing. - Ottawa : Canadian Council of Cardiovascular Nurses. - 0843-6096. ; 20:1, s. 16-21
-
Tidskriftsartikel (refereegranskat)abstract
- BACKGROUND: There is a need for a short and easily administered scale, in the Swedish language, for assessing partner relationships in the health care of persons with cardiac disease. PURPOSE: To establish the reliability and validity of the Swedish version of the Relationship Assessment Scale (RAS). DESIGN: The present pilot study has a methodological design. FINDINGS: Content validity has been tested for relevance, clarity and readability. The scale was tested for construct validity with explorative factor analysis. The reliability was tested by internal consistency and test-retest analysis. The result showed a two-factor solution, which does not correspond to the original proposed one-factor solution. The factor analyses revealed two quite distinct factors of RAS, labelled "Relationship built on expectations and satisfaction of needs" and "Relationship built on love and devotion". CONCLUSIONS: The scale has satisfactory psychometric properties in terms of content validity, construct validity, homogeneity and stability in a population of persons with cardiac disease. Wider evaluations of the RAS for other populations and settings are recommended.
|
|
| 5. |
- Roxberg, Åsa, 1953-, et al.
(författare)
-
In the midst of the unthinkable. A phenomenological life-world approach to the experiences of suffering and relieved suffering during the tsunami catastrophe, 2004.
- 2009
-
Ingår i: International Journal of Qualitative Studies on Health and Well-being. - New York, NY : Informa Healthcare. - 1748-2623 .- 1748-2631. ; 4:1, s. 17-27
-
Tidskriftsartikel (refereegranskat)abstract
- The aim of this study was to highlight the instantaneous experience of suffering and relieved suffering that was presented on the Swedish Television (SVT) by those who experienced the tsunami wave in Thailand, 26 December 2004. The selected TV-interviews were watched, transcribed and conducted with an empirical phenomenological analysis. A phenomenological lifeworld approach, inspired by the French philosopher Maurice Merleau-Ponty, was chosen for the theoretical framework. The findings showed three main features: the motion, the stillness and the shift in perspective. The motion comprised both the motion of the wave and the motion it caused the victims in terms of external as well as internal disorder. When the tsunami waves withdrew, it was followed by stillness. The feeling of being unreal was prominent, triggered by lack of information and endless waiting. Another prominent feature was the victims’ incapacity to answer ‘‘how long’’ they had suffered before being rescued. The tsunami catastrophe seemed to be a timeless event. Caring for other victims meant a shift in perspective in one’s own devastated world to that of another person. The shift between focus and comprehension, contributed to the making of life-saving decisions, for the victims themselves and for other victims. The findings were mainly reflected on from the perspective of the French philosopher Maurice Merleau-Ponty, for example the experience of time as an embedded and lived now. It was also reflected on from the perspective of the German philosopher Karl Jaspers as a limit-experience and as a fulfilment of love. A suggestion for further research is to investigate how suffering and relieved suffering is experienced and encountered when further time has passed.
|
|
| 6. |
- Roxberg, Åsa, 1953-, et al.
(författare)
-
Out of the wave : The meaning of suffering and relief from suffering as described in autobiographies by survivors of the 2004 Indian Ocean tsunami
- 2010
-
Ingår i: International Journal of Qualitative Studies on Health and Well-being. - Järfälla : Co-Action Publishing. - 1748-2623 .- 1748-2631. ; 5:3
-
Tidskriftsartikel (refereegranskat)abstract
- The aim of this study was to explore the meaning of suffering and relief from suffering as described in autobiographies by tourists who experienced the tsunami on 26 December 2004 and lost loved ones. A lifeworld approach, inspired by the French philosopher Merleau-Ponty's phenomenology of perception, was chosen for the theoretical framework. This catastrophe totally changed the survivors' world within a moment. In this new world, there were three main phases: the power of remaining focused, a life of despair, and the unbearable becoming bearable. Life turns into a matter of making the unbearable bearable. Such challenging experiences are discussed in terms of the philosophy of Weil, Jaspers, and Merleau-Ponty. The survivors of the tsunami catastrophe were facing a boundary situation and "le malheur," the unthinkable misfortune. Even at this lowest level of misfortune, joy is possible to experience. This is part of the survivors' ambivalent experiences of their lifeworld. In this world of the uttermost despair there are also rays of hope, joy, and new life possibilities. © 2010 Å. Roxberg et al.
|
|
| 7. |
- Roxberg, Åsa, 1953-, et al.
(författare)
-
Out of the wave : the meaning of suffering and relieved suffering for survivors of the tsunami catastrophe. An hermeneutic-phenomenological study of TV-interviews one year after the tsunami catastrophe, 2004
- 2010
-
Ingår i: Scandinavian Journal of Caring Sciences. - Chichester : Wiley-Blackwell. - 0283-9318 .- 1471-6712. ; 24:4, s. 707-715
-
Tidskriftsartikel (refereegranskat)abstract
- The tsunami catastrophe, 26th December 2004, is one of a number of catastrophes that has stricken mankind. Climate reports forecast that natural disasters will increase in number in the future. Research on human suffering after a major catastrophe, using a caring science perspective, is scarce. The aim of the study was to explore the meaning of suffering and relieved suffering of survivors of the tsunami catastrophe, 26th December 2004. An explorative study design, inspired by the French philosopher Paul Ricoeur’s hermeneutic-phenomenology, was used. Interviews made by the Swedish Television (SVT) in connection with the 1 year anniversary were carried out on site in the disaster area and in Sweden. The text analysis revealed four main themes: ‘An incomprehensible event’, ‘A heavy burden’, ‘Help that helps’, and to ‘Being changed in a changed life situation’. The findings were mainly interpreted in light of Paul Ricoeur’s thinking on suffering, quilt, forgiveness, time and narrative. The first year after the loss of loved ones in the tsunami catastrophe, 2004, was like starting an inner as well as an outer journey. This journey was experienced as living with the heavy burden of an incomprehensible event. Help that helped was mediated by consolers who endured the suffering of the other. An ‘enduring courage’ is a key moral virtue to encounter the alienation of the sufferer and how it in turn alienates from the sufferer. It is also important to recognize that the complexity of the world of those who have lost loved ones in major catastrophes includes possibilities for reconciliation with the loss. The reconciliation creates hope that opens up for being changed in a changed life situation.© 2010 The Authors. Scandinavian Journal of Caring Sciences © 2010 Nordic College of Caring Science.
|
|
| 8. |
- Roxberg, Åsa, 1953-, et al.
(författare)
-
The meaning of consolation as experienced by nurses in a home-care setting
- 2008
-
Ingår i: Journal of Clinical Nursing. - Chichester : Wiley-Blackwell. - 0962-1067 .- 1365-2702. ; 17:8, s. 1079-1087
-
Tidskriftsartikel (refereegranskat)abstract
- Aims and objective. The aim of this study was to illuminate nurses’ experiences of consolation and how these experiences relate to suffering and care.Background. Consolation is commonly associated with the relief of suffering. The question of consolation in terms of its definition and relevance for care has, however, been a matter of discussion among nurse researchers. The question raised concerns about the nature of consolation, its place and its role in relation to care and the caring sciences.Design. An explorative qualitative interview study with 12 participants, six registered and six enrolled nurses, was carried out in a home-care context.Methods. A phenomenological-hermeneutic method inspired by the French philosopher Paul Ricoeur was used for the text analysis.Results. Two main aspects of consolation appeared: ‘the present consolation’, which is flexible, sustaining and opening and ‘the absent consolation’, which conceals the suffering and is incapable of consoling. The result was interpreted from a philosophical-ethical perspective, based on the works of Levinas and Lögstrup.Conclusions. Consolation appears as a complex phenomenon, both in terms of its existence and its absence consolation, constituting a caring and non-caring consolation. A caring consolation entails meeting the other as different and being present in a way that gives the other space to be the one he or she really is. It requires acceptance, accepting the sufferer and his/her way of suffering as unique.Relevance to clinical practice. The clinical nurse is involved in complex care situations, which entails both reflecting upon and using intuition when consoling. A caring consolation is a contradictory phenomenon that requires a nurse to be capable of both reflecting upon and acting intuitively on the unique suffering of the other. © 2008 Blackwell Publishing Ltd.
|
|
| 9. |
- Svedberg, Petra, 1973-, et al.
(författare)
-
Psychometric evaluation of a Swedish version of Krantz Health Opinion
- 2012
-
Ingår i: Open Journal of Nursing, Article ID:23138. - Irvine, CA : Scientific Research Publishing, Inc.. - 2162-5344 .- 2162-5336. ; 2:3, s. 4-
-
Tidskriftsartikel (refereegranskat)abstract
- The purpose of this study was to evaluate the psychometric properties of a Swedish version of The Krantz Health Opinion Survey (KHOS). A convenience sample of 79 persons (47 men and 32 women) was recruited from The Heart and Lung Patients’ National Association at ten local meeting places in different areas in Sweden. The questionnaire was examined for face and content validity, internal consistency and test-retest reliability. The findings showed that the Swedish version of KHOS is acceptable in terms of face and content validity, internal consistency and test-retest reliability over time among 79 individuals >65 years of age and with a cardiac disease. In conclusion, wider evaluations of the psychometric use of KHOS for other populations and settings are recommended.
|
|
| 10. |
- Svedberg, Petra, 1973-, et al.
(författare)
-
Psychometric evaluation of “The 25-item Sex after MI Knowledge Test” in a Swedish context
- 2012
-
Ingår i: Scandinavian Journal of Caring Sciences. - Malden, USA : Wiley. - 0283-9318 .- 1471-6712. ; 26:1, s. 203-208
-
Tidskriftsartikel (refereegranskat)abstract
- The patients’ sexual life after a myocardial infarction is important for his/her quality of life. In spite of this, many patients are in doubt regarding their sex life after a myocardial infarction (MI) and the sexual information received, and counselling from health care providers has been seen to be insufficient. The purpose of this study was to evaluate the psychometric properties of ‘The 25-item Sex after MI Knowledge Test’ in a Swedish context. A convenience sample was recruited. The scale was translated into Swedish and completed by 79 former patients from The Heart and Lung Patients’ National Association on two occasions, with an interval of 2 weeks. The scale was tested for face and content validity, internal consistency and test–retest reliability. The result in this study indicates that the instrument has good face and content validity and displayed a moderate internal consistency (alpha 0.61). The instrument showed some level of instability in test–retest reliability with 60% of the items presenting moderate or strong agreement between the test and retest. Further studies that use this instrument in larger and more diverse samples are thus needed.
|
|
